Allie Ladd

Rising Up Rare

Categories

Non-Profit, Business

Number of episodes

6

Published on

2025-04-06 13:00:00

Language

English

Rising Up Rare

What’s This Podcast
About?

Giving Hope, Creating Action The Cure MPS1 Project uses MPS1 family stories and the six degrees of separation to create a movement and cure MPS1.  Each child’s story is a testament to strength, resilience, and hope. By sharing their journeys, we aim to bring awareness to the world and connect people in a way that leads to real action. Through the Kennedy Ladd Foundation, we are committed to raising funds for MPS1 medical research, improving quality of life for affected families, and advocating for newborn screening in every state. Together, we will find a cure.”

Podcast Urls

Podcast Copyright

© 2025 Rising Up Rare

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