Syngap Research Fund, 501(c)(3)
SYNGAP1 Stories
Categories
Parenting, Kids & Family
Number of episodes
35
Published on
2025-06-05 21:58:00
Language
English
Categories
Parenting, Kids & Family
Number of episodes
35
Published on
2025-06-05 21:58:00
Language
English
SYNGAP1-related disorders is a rare disease that affects Ashley Frye's son Nathan and Rainy Schlosser's daughter Hope. As of January 1, 2025, there are only 1,530 people in the world diagnosed with SYNGAP1. There is no cure. In each episode of SYNGAP1 Stories, first developed by Ashley and continued by Rainy, we will chat with SYNGAP1 parents, volunteers, caregivers, researchers, and partners about their journey with SYNGAP1 in their lives. Their joys and successes, as well as heartaches and advice, will be discussed in this heart-warming series as we support the SYNGAP1 community.
Syngap Research Fund, 501(c)(3)
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